Hysterectomy -- the surgical removal of a woman's uterus, and sometimes ovaries and cervix -- might be the most common gynecological surgery in the U.S. today. (Some researchers say caesarian-section birth is No. 1.) It's long been prescribed for ailments like cancer and fibroid tumors.
Now, increasingly vocal critics are making the provocative argument that the surgery is almost always unnecessary. A new book, The H Word: What gynecology doesn't want you to know about 100 years of hysterectomy and female castration in America, chronicles a year of anti-hysterectomy activism by its authors and their foundation, Hysterectomy Educational Resources and Services (HERS). The activists traveled the country protesting outside hospitals in all 50 states and staging a reading of un becoming, a play about the topic by one of the book's co-authors, Pittsburgh-based playwright Rick Schweikert.
The H Word consists of a series of vignettes, and is flush with first-name-only anecdotes from women who say their lives were destroyed by hysterectomy. Their complaints range from depression to loss of sex drive to incontinence. The protesters encounter doctors who don't want to take their pamphlets or who say they never do unnecessary surgery.
The self-published book argues that women are uninformed about and bullied into the surgery by profit-motivated doctors. It says that women would never consent to have their sex organs removed if they knew what they were in for.
Schweikert and co-author Nora W. Coffey -- who herself underwent a hysterectomy -- assert that women whose uteruses are removed lose sexual function, age more quickly, and develop problems with their hips and backs which can compromise mobility. It says that many of the problems that hysterectomy is supposed to solve will go away by themselves, and that most of the others don't merit major surgery. Fibroids, for example, are small tumors in the uterine lining that can cause heavy bleeding and discomfort, but they aren't cancerous, and can be removed without hysterectomy.
Schweikert and Coffey say that the overwhelming majority of hysterectomies performed -- their figure is 98 percent -- aren't lifesaving procedures. They want to codify consent for hysterectomy -- in part by requiring that hospitals show a video they produced that details their take on the procedure.
"These organs have lifelong functions -- you cannot say a woman is improved by having her sex organs removed. If the uterus is removed, the woman is damaged," Schweikert says, sitting in his Downtown theater space.
Such views challenge medical conventional wisdom. For instance, UPMC's patient-information pamphlet on the surgery says, "A woman's sexuality and femininity are not changed by a hysterectomy." However, in seeming contradiction, it adds, "some women may notice a change in their sexual response after hysterectomy." And it says that removal of the ovaries will cause "surgical menopause," and that women can expect hot flashes and night sweats. The pamphlet urges women to ask lots of questions of their doctors before consenting to hysterectomy.
There are 22 million hysterectomized women in the country. Some 600,000 hysterectomies were performed in 2004 alone. Schweikert says the motivation behind all this surgery is profit, plain and simple.
"Either you get out of med school and struggle to pay your bills doing Pap smears or you start doing surgeries and you become a millionaire," he says.
For-profit health care draws criticism from plenty of places, not just anti-hysterectomy activists. A system that pays doctors by the procedure, whether it be hysterectomy or tonsillectomy, is fundamentally flawed, says New York-based journalist Maggie Mahar, author of the book Money-Driven Medicine and HealthBeatBlog.org.
"Patients don't drive their own care. Doctors and hospitals guide what we get," says Mahar. "More care just isn't better care."
Moreover, Schweikert and Coffey are far from the only people ringing alarms about hysterectomy. It's become something of a cottage industry, with articles and blog posts dueling the issue out. Some doctors and hysterectomized women say the surgery is safe and relieves women of pain. But other doctors and hysterectomized women say it's a barbaric and unnecessary way to make a buck.
The late Robert Mendelsohn, a self-described "medical heretic," medical-school instructor and president of the National Health Federation, was a vocal opponent of hysterectomy. Schweikert cites him saying doctors will give up hysterectomy only when a more profitable surgery arises to take its place.
"Every doctor is an accomplice unless they stand against it," Schweikert says.
-- E-mail Melissa Meinzer about this story
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I think US women need to stand up to their doctors, that will immediately improve your health and peace of mind. I was really shocked to hear from my US colleagues what your doctors say is necessary for all healthy women from an early age AND how it's carried out...(the use of stirrups!) It is SO different to the way women are treated elsewhere that it made me wonder whether sadists control women's health in the States. Annual gyn exams are unnecessary in asymptomatic women and in fact, my Dr believes they can be harmful. Why? Because they can lead to more invasive and possibly harmful testing and unnecessary surgery or other intervention. They are also of low clinical value. This exam is often very difficult for many women and should only be carried out when absolutely necessary... Annual breast exams are unnecessary for women under 40. Younger women have naturally lumpy breasts and CBE often leads to unnecessary biopsies for benign things. Breast cancer is uncommon in this age group as well. Mammograms are recommended from 40 - again, excessive - there are risks with mammograms and especially in women under 50 or 55. The Nordic Cochrane Institute are so concerned, they have released their own information sheet for women. (see below) If you have them, be very careful before age 50. US women are hugely over-screened for cervical cancer as well. This does not improve your health - it jeopardizes your health. Over-screening puts you at high risk of a false positive and unnecessary and possibly harmful colposcopy and biopsies. Some women are left with continuing health problems after these procedures - mental and/or physical. Your doctors DEMAND screening of women and even withhold the Pill until you agree... Cancer screening and the Pill have nothing to do with each other. Screening has risks as well as benefits and your informed consent must be obtained prior to testing. The US Food and Drug Admin, WHO and the American College of ObGyns all say these exams and test are NOT required for the initiation or continuing use of the Pill. Your doctors have been told to stop over-screening, yet the majority of your doctors continue to push annual screening, putting you at risk. They argue if women are only required to have three yearly screening, they won't turn up for "their other checks". Given these other checks are NOT recommended by the majority of the worlds doctors and are optional at best...what does that say to you? It says to me that they fear losing control of women and profits will fall... This has nothing to do with your health. I read that 1 in 3 US women have had a hysterectomy - this is a VERY HIGH figure. THAT figure alone should be cause for an investigation. Women should understand the risk of cervical cancer is low and understand the pap smear is an unreliable test. Protect yourself from over-screening. If you wish to have screening, have a look at the Finnish and Dutch programme. The Finns have the lowest rates of cervical cancer in the world and just as importantly, send the smallest number of women for colposcopy. (55% will have a colposcopy and usually biopsies, in her lifetime with only a very small number having any sign of malignancy) Two yearly screening - 77% Annual - 95% The Finns and Dutch don't screen women under 30... A very high % of smears in this group are abnormal thanks to benign changes that naturally occur in young women...changes that resolve without medical intervention. Cancer in this group is rare. Screening does more harm than good in this age group. The UK also does not screen women under 25. The Finns and Dutch then screen 5 yearly until age 60. Know your risk profile before agreeing to smears. US doctors are so unethical they even screen women who've never been sexually active from age 21 and some even younger. Couples who were not sexually active before getting together and are mutually monogamous...screening is very unlikely to benefit these women. The risk of this cancer is so low and the risk of false positive and biopsies really quite high, some low risk women may choose not to have screening. Note: You are more likely to die from almost any other form of cancer. Testicular cancer kills almost as many men as cervical cancer kills women, yet we don't hear much at all about testicular cancer. The risk of this cancer has been exaggerated.... Sadly, many people over-treated for false positives walk away thinking they had a cancer scare. Over-treatment in the minds of some women means cancer, it rarely means cancer. Angela Raffle, UK cancer screening expert released some figures a year or so ago - 1000 women need screening for 35 years to save one woman from cervical cancer. (mentioned in article by Anna Sayburn) The following articles show the extent of the over-screening and over-treating of US women. You don't need this level of medical intervention and control in your lives. Protect your health, make informed decisions and don't allow your doctors to over-examine, over-screen, over-treat and perform unnecessary hysterectomies. I think fear of litigation may be another factor that has created this harmful environment in the States. If you make it clear to your Dr that you've made informed decisions, that should help or keep looking.. I'm sure you still have some balanced and ethical doctors working in your country. http://www.independent.co.uk/arts-entertainment/health-hands-off-my-chest-doctor-1177987.html http://ajcp.ascpjournals.org/content/supplements/114/Suppl_1/S48.full.pdf+html?sid=fb361d0c-ca1e-432b-a6dc-2c23cc95e16d http://www.screening.dk/folder_uk.pdf (Nordic Cochrane Institute) http://www.mja.com.au/public/issues/176_11_030602/dic10690_fm.html (Great chart which shows the HUGE over-screening of US women) http://www.guardian.co.uk/society/2003/may/22/genderissues.publichealth
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Jeanne, I think we all know why this is being done to women-for the money. Why else would a OBGYN give a surgery that wasn't necessary. Around 98% are not necessary. I ordered 12 books and have only one left, so I will be ordering more because I want every girl and woman in my family to have The H Word Book so they are aware what will happen if they have this damaging and dangerous surgery with many consequences and after-effects. I hope the doctors are getting the message that we are not going to be abused anymore! Can you imagine what would happen if this many men were being castrated every year?
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I was one of 'those' women. My doctor preformed a total abdominal hysterectomy on me even though my consent form stated 'Only if cancer detected' He told me it 'LOOKED' bad. My reports showed a benign ovarian cyst. My uterus and left ovary were normal. I had excellent insurance and he took advantage of this. Because of the profound changes to every part of my being, I carefully planed my suicide. My doctor had repeatedly told me my symptoms were 'All in my head' He convinced me I was a VERY RARE case. He told me women stop him in the street and thank him for this surgery. He insisted 'I must get over my silly feelings' After 2 years of suffering, and days from ending it, I stumbled on to the HERS Foundation web site and ordered The H Word. I AM NOT ALONE! I am not a rare case. I was tricked and used and lied to. Every person must read this book. It should be a part of all sex education programs, taught anywhere. OB/GYN's should have, and insist, on every patient reading it. If your doctor cares about YOU or your WIFE or your DAUGHTER, if he/she HONESTLY cares about us as women, you will know about this book. Please don't wait. Read it now.
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Thank you to the brave women and men who have posted here. It is not easy to display your feelings that are so personal for everyone to read. This is a must read book to get the word out that the majority of hysterectomies are unnecessary and when given one, how it destroys your life, your career, your marriage, your sexual feelings, your health and your zest for life. It was a pleasure to send my doctor the 'H' book along with a letter telling him how he has destroyed everything about me. I have been wanting to do that for 20 years. I am sure he didn't add it to his book collection, but his name is listed who received the book.
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The endocrine system regulates a woman's bodily function and emotions through all of the human hormone receptors. I am convinced hiding the endocrine system from women through routine gynecological exams is vital to the gynecologists female iatrogenic illness contribution to the medical industry. The Gynecologist surgeons are "handing chronically ill woman (via: sex organ, endocrine organ amputation) to the medical industry for a life-time of various CAUSED (iatrogenic) HEALTH CARE PROBLEMS...This is what the Gynecologists are doing to women. The negligence of not informing women of the known medical facts regarding the amputation of the female sex organs including the endocrine system (ovaries) by deceit must be eradicated immediately. The known gynecological iatrogenic illness epidemic is embarrassing for the entire medical industry at this point and is "THE MOST HEINOUS ACT OF MEDICAL DECEIT RECORDED IN HISTORY-FEMALE SEX ORGAN AMPUTATION/CASTRATION BY MEDICAL DECEIT FOR PROFIT". I believe every branch of medicine would be positively affected if the biggest "best kept secret" in medical history "female sex organ amputation/castration by medical deceit for profit" is brought "out" and ended by law. Sign the HERS Foundation-Petition to add informed consent to the gynecological consent form. Read "The H Word" and sign the HERS "Petition" to pass a "law" to end this heinous calculated medical de-sexing of the American woman by medical deceit for profit.
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I had to post one more comment. I am so upset about one matter with this book, the H Word. I feel it came too late for so many women, as myself. This is my only disheartening part about the book. We needed this book to read so long ago. Of course, nothing against the authors, but too bad this book was not out, as I said, previously, and on a 'Best Seller List' (which it should be, and hope it will - get the 'word' out).
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